Annual REPORT 2010 eng _IK1 - Český registr dárců krvetvorných

INSTITUT KLINICKÉ A EXPERIMENTÁLNÍ MEDICÍNY
VÍDEŇSKÁ 1958 / 9
ČESKÝ REGISTR DÁRCŮ KRVETVORNÝCH BUNĚK
140 21 PRAHA 4 – KRČ
AAnnnnuuaall RReeppoorrtt 22001100
Introduction to CSCR
Contact address:
Phone:
E-mail:
www:
Head of CSCR:
Chief physician
Phone:
E-mail:
Registry oordinators
Contact persons:
Phone:
E-mail:
Donor Centre
Contact persons:
Phone:
E-mail:
Financial Dpt., Administration
Contact persons :
Phone:
E-mail:
Transplant Centres
Institute for Clinical and Experimental Medicine
Czech Stem Cells Registry (CSCR)
Vídeňská 1958/9
140 21 Prague 4
Czech Republic
+ 420 261 361 011, 261 362 363, 261 362 346
[email protected]
www.darujzivot.cz
Mgr. Marie Kuříková
+420 261 361 011
[email protected]
MUDr. Lenka Záhlavová
+ 420 261 362 363
[email protected]
Mgr. Irina Kolaříková
+ 420 261 361 011
[email protected]
MUDr. Jana Švarcová, Mgr. Ludmila Březinová
+ 420 261 362 359 / 261 363 383
[email protected] / [email protected]
Iveta Böhmová
+ 420 261 362 346
[email protected]
Institute of Hematology and Blood Transfusion (IHBT)
U Nemocnice 2094/1
128 20 Prague 2, Czech Republic
www.uhkt.cz
Chief physician - transplant unit: MUDr. Antonín Vítek
University Hospital Brno
Department of Hematology and Oncology
Jihlavská 20
625 00 Brno, Czech Republic
www.fnbrno.cz
Chief Physician: prof. MUDr. Mayer, CSc.
University Hospital Motol
Department of Paediatric Hematology and Oncology
V úvalu 84, 150 06, Prague 5 - Motol, Czech Republic
http://kdho.fnmotol.cz
Chief physician - transplant unit: Doc. MUDr. Petr Sedláček, CSc.
Other Cooperation:
Cord Blood Bank Czech Republic
Address:
Institute for Clinical and Experimental Medicine
Czech Stem Cells Registry – Bldg. Z4
Vídeňská 1958/9
140 21 Prague 4
Czech Republic
Tel.:+420 26136 1011, +420 26136 2346
Fax:+420 26136 2370, +420 24171 2242
INSTITUT KLINICKÉ A EXPERIMENTÁLNÍ MEDICÍNY
VÍDEŇSKÁ 1958 / 9
ČESKÝ REGISTR DÁRCŮ KRVETVORNÝCH BUNĚK
140 21 PRAHA 4 – KRČ
International Cooperation:
Bone Marrow Donors Worldwide – BMDW
World Marrow Donor Association – WMDA
European Marrow Donor Information System - EMDIS
Czech Stem Cells Registry, former Czech Bone Marrow Donor Registry, was founded in 1991 in the
Institute for Clinical and Experimental Medicine (IKEM) in Prague. In the same year, it became member
of the international network of unrelated bone marrow donor registries managed from the
coordinating centre in Leiden, The Netherlands. CSCR is member of BMDW and WMDA.
CSCR gradually established contacts and joined other cooperating registries and information networks:
e.g. National Marrow Donor Program (NMDP) in Minneapolis, USA in 1997 and European Marrow
Donor Information System (EMDIS) in Ulm, Germany in 2003.
CSCR searches in its database HLA matched donors for Czech and international patients as well.
Donor testing is carried out in collaboration with the Department of Immunogenetics, IKEM.
In 2010 HLA laboratory received a renewal of accreditation from EFI (European Federation For
Immunogenetics).
CSCR holds ISO 9001 certification dated September 2007.
WHAT WE DO:
Our services include all steps from search process to transplantation from unrelated donor.
We also prepared some campaigns for recruitment of prospective unrelated donors of hematopoietic
stem cells. Last year we released a new information leaflet and a new poster, we organized several
information seminars for students from secondary schools. We also started our own Facebook profile
and gathered many Facebook supporters. Together with the family of one of our patients we arranged
a Photography Exhibition (aerial views) taken by the patient during his own flights above South
Bohemia. The exhibition was held under the auspices of our Registry and took place in Tábor, České
Budějovice and Prague. It was a charity event in support of the CSCR.
JOINING THE REGISTRY:
Donors who are willing to join CSCR registry can fill out the registration form on our website or they
can contact us by phone, email or in person.
After the recruitment/information session the donors are asked for a small blood sample for HLA
typing.
What’s new?
For people who can’t make an appointment for blood drawing, we have prepared a SALIVA TESTING
KIT and instructions for use which can be sent to them by mail. The donors are asked to send us back
our registration form filled in and signed and the saliva sample.
Address:
Institute for Clinical and Experimental Medicine
Czech Stem Cells Registry – Bldg. Z4
Vídeňská 1958/9
140 21 Prague 4
Czech Republic
Tel.:+420 26136 1011, +420 26136 2346
Fax:+420 26136 2370, +420 24171 2242
INSTITUT KLINICKÉ A EXPERIMENTÁLNÍ MEDICÍNY
VÍDEŇSKÁ 1958 / 9
ČESKÝ REGISTR DÁRCŮ KRVETVORNÝCH BUNĚK
140 21 PRAHA 4 – KRČ
REPORT:
Number of donors/cord blood units newly added in the Registry during the year 2010:
In 2010, CSCR recruited and performed HLA typing on 529 donors.
Entry in the registry is restricted by age (18-35 years) and good health. Donors can register via website, by
phone or by submitting the application form to the registry address.
Registration of cord blood units is performed in cooperation with the Cord Blood Bank Czech Republic.
Number of donors/CBU newly added to the
registry during the year 2010
310
number of donors
529
I.
number of CBU
Number of registered donors as of 31 December 2010:
At the end of December 2010, total 23 811 donors were registered in CSCR.
25000
20000
16980
17913
19178 19206
18538 19098
20015 20199
15000
numbers of donors
numbers of CBU
10000
5000
1850
1044 1394
3317 3612
2463 2792 2994
0
2003 2004 2005 2006
Address:
Institute for Clinical and Experimental Medicine
Czech Stem Cells Registry – Bldg. Z4
Vídeňská 1958/9
140 21 Prague 4
Czech Republic
2007 2008 2009 2010
Tel.:+420 26136 1011, +420 26136 2346
Fax:+420 26136 2370, +420 24171 2242
INSTITUT KLINICKÉ A EXPERIMENTÁLNÍ MEDICÍNY
VÍDEŇSKÁ 1958 / 9
ČESKÝ REGISTR DÁRCŮ KRVETVORNÝCH BUNĚK
140 21 PRAHA 4 – KRČ
II.
CSCR donors by age and gender:
Age of CSCR donors
9 000
8 000
3 570
7 000
3 442
6 000
5 000
4 000
Females
4 392
Males
2 156
3 000
3 103
2 000
1 568
1 000
0
631
346
18 - 25
563
428
26 - 35
36 - 45
46 -55
> 55
Age
Sex of CSCR donors
Males
10 362
Address:
Institute for Clinical and Experimental Medicine
Czech Stem Cells Registry – Bldg. Z4
Vídeňská 1958/9
140 21 Prague 4
Czech Republic
9 837
Females
Tel.:+420 26136 1011, +420 26136 2346
Fax:+420 26136 2370, +420 24171 2242
INSTITUT KLINICKÉ A EXPERIMENTÁLNÍ MEDICÍNY
VÍDEŇSKÁ 1958 / 9
ČESKÝ REGISTR DÁRCŮ KRVETVORNÝCH BUNĚK
140 21 PRAHA 4 – KRČ
Number and type of donations in the year 2010:
In 2010, 10 transplants from CSCR donors were performed in Czech and international
patients.
III.
The total number of CBUs exported for international patients was 13.
The total number of donations for Czech patients organized by CSCR in cooperation
with other registries was 65.
Number and type of donations of CSCR donors
for patients in CR and abroad
14
13
12
10
Bone Marrow
PBSC
8
CBU
6
DLI
3
4
2
2
2
1
2
0
0
0
Donations for patients abroad
Donations for patients in CR
Type of donations for patients in CR organized by CSCR in cooperation
with other registries
1 5
17
Bone Marrow
PBSC
CBU
42
Address:
Institute for Clinical and Experimental Medicine
Czech Stem Cells Registry – Bldg. Z4
Vídeňská 1958/9
140 21 Prague 4
Czech Republic
DLI
Tel.:+420 26136 1011, +420 26136 2346
Fax:+420 26136 2370, +420 24171 2242
INSTITUT KLINICKÉ A EXPERIMENTÁLNÍ MEDICÍNY
VÍDEŇSKÁ 1958 / 9
ČESKÝ REGISTR DÁRCŮ KRVETVORNÝCH BUNĚK
140 21 PRAHA 4 – KRČ
IV.
Search requests for Czech patients:
The total number of search requests sent from TCs in Czech Republic was 148 in 2010.
Search requests for patients in CR
200
174
180
148
146
160
127
140
120
133
123
101
97
100
80
60
40
20
0
2003
2004
2005
2006
2007
2008
2009
2010
year
V.
Search requests for international patients:
The total number of search requests for patients abroad was 16 677 in 2010.
Requests for the search of a donor for patients abroad
18000
16677
15136
16000
14062
14000
12700
11000
12000
9943
10000
8000
6000
4000
2000
1425
382
0
2003
2004
2005
2006
2007
2008
2009
2010
year
Address:
Institute for Clinical and Experimental Medicine
Czech Stem Cells Registry – Bldg. Z4
Vídeňská 1958/9
140 21 Prague 4
Czech Republic
Tel.:+420 26136 1011, +420 26136 2346
Fax:+420 26136 2370, +420 24171 2242